neurodiversity

Celebration, Overwhelm – and a smirk.

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Last week was a lot, and this week has continued. Like many Autistics with HSP, I put others first. I am terrible at knowing my limits, and holding my boundaries.

Awareness

2 weeks ago, a teacher at my school shared with me the research his gifted students had been doing. It was all on an online platform. They had been researching autism, and were preparing a presentation about it. so I went on this platform and I wrote down some notes for the students. Just some observations based upon their writing. Some suggestions for terminology. things like this.

Many of the students were in my class over the last few years. So I was sure they would know who I was making the notes.

Last Wednesday was the day for their presentations.

I love that they had done the research. I love that they had visited a school for stage 3 autists in Beijing. and that they had observed with their own eyes. None of them interacted with the students at that school, but it was a step.

Due to time constraints, they had all 4 presentations at the same time. they put up 4 tables, not far from each other in our Highschool Library. I wanted to support them so much. But I couldn’t hear well. four different speeches at the same time. with videos and observable media.

At one point, I sat next to one computer and closed my eyes, to hear the video over the talking. It was near impossible.

In the end, I was at one group while the others packed up. This group was explaining to me, and our head of school. When they finished, the head of school asked them about meeting autistic people. I am standing beside him, my lanyard strap covered with pins that all say “Autistic”, “I am Autistic”, “Neurodivergent” etc. The students pointed to me.

He looked at me and asked if I had connection to Autism. I have worked closely with this man for 4 years, and I had to tell him that I was autistic. I had come out in front of the entire school earlier this year, but he was absent. He had a lot of questions, and that attention made me feel awkward.

Celebration

The very next day was my son’s Graduation. I was excited, and anxious, and so many different things. I love my Son. I am proud of my son, and all he has accomplished.

I forget, that my school never does anything small. The kids deserve an amazing celebration. And I guess Allistic people like disco lights and loud music, and red carpets. I could watch center stage, or I could watch the live broadcast (While inside the celebration). But If I tried to look anywhere but the exact center stage, I was blinded by a disco-laser-spotlight thing.

My son and his band performed some songs, amazingly. I couldn’t watch it. They were on a side stage. I recorded it, but if i looked up, I would get a laser in my face.

I love that the children had a big red carpet like moment. Their Big day. But after the family lunch, I had to go home and get away. It was too much. I actually shivered while sitting on the couch by myself for 2 hours.

Family time.

I made the mistake of taking my family to the Mall over this past long weekend. My youngest loves the mall. But long weekends are too busy. My oldest children escaped after lunch. They took a car home. It was too loud and too many people for them. I stayed with my wife and youngest. She had a great time.

I love spending time with my family. I always feel terrible if I need time to regulate, or recover from over stimulation.

These are the times I struggle the most. I want to show my family I love them. I want to do amazing things with them. I want to get out and make memories. I just cannot do it with too much noise, lights, or people.

And it compounds.

If any one of these things had happened in a week, I would be fine. But all three of them within only a day or so apart, it makes things so much harder. I had to spend Monday curled on the sofa for the most part.

Smirk.

I have been trying to use as much time as I can during my break times to relax and regulate. It is End of Year, and there is a lot of paperwork that needs to be filled out, including self-reflections. I have been staying afloat, barely.

Today was a very difficult day, but it ended with something that made me smile.

My friend, who works with the gifted students, came up to me. One of the girls in his class was a student of mine. She published a tiny book about moving to a new place, and it convinced me to publish my own book. Well she came up to him and had questions about why I was giving so much feedback on her writing. And he let her know that I was autistic, and he told me he could see her coming to realization. He could see her piecing our year in grade 3 back together with this new information. He said she was surprised, but happy to know.

It made me smile.

And then I came home and passed out on the sofa for 2 hours.

Autistic Teacher. Out or Not?

Autism, Daily Life, Memoires, Musings, Uncategorized, , , , One comment

Today I had a nice short conversation with my Assistant Principal. Today was our Parent Teacher Conferences, and she was curious how they were going. At one point she asked me if I had told my parents about me being autistic.

At first I didn’t realize she meant my student’s parents. My response was a simple, yes, of course my parents know. They had me diagnosed when I was a child. It was just after I answered that I saw the look in her face. No, sorry. I have been open about it with the students, but not advertised to the parents.

I mean I wear a pin on my lanyard that says “I am Autistic.” They may have seen it, but I have not said anything to them. She asked me why. She has apparently been one of my supporters, without me knowing.

For context, I came out to the entire school staff about a week ago. I have had a group of people that knew for a while that could help support me. But I was asked to make a speech promoting Pink Shirt Day. During my speech I talked about how important the event was to me (even if it 2 months late). I talked about being bullied as a child for being autistic, and how that bullying still affects me today.

I think some of my coworkers clued in as to why I don’t join the many morale building activities at the local bars or the major school dress event for teachers each year. It’s too loud and too overwhelming.

My AP told me it is important to hear my story. It echoed a message I got on one of my posts a few months ago. But I have to be honest, it’s not the easiest thing to bring up.

At my old school I was open about being autistic. This is why some of my current coworkers know. They worked with me then. I had brought both Pink shirt day, and Blue shirt day to that school. I am certain neither has survived without me there.

Blue shirt day is April 2nd. It is now called World Autism Day. I set it up to help introduce neurodivergence to the children. The school was fine about it. But a co-worker there took offense. He was certain that the students would start to diagnose each other and that it would cause segregation and bullying.

I can understand his concerns. But if it is handled properly, with an external example, there should be no problem. I told him to use me as an example. He did not teach about autism, even if the school and I asked. I was the head of his department. The school was holding a charity event to raise money for an orphanage that cared for autistic children. He refused to acknowledge it.

After that he began to act aggressive to me. He knew about my autism, and it made him dislike me more. He used this knowledge to have me removed from my position as department head. And he used to spread rumors about me to the team I had. Some of them have joined me at my new school.

When I joined my current school, I opened up about my autism to my grade level lead. I was advised to not make it public. Parents might use it as a reason to request a different teacher for their child. So I didn’t. I was interviewed by the school magazine on my experience with neurodivergent students. However, I was still scared to talk about my own diagnosis.

After 3 years at this school, I began to open up about it again. But I still have doubts. Angry co-workers or parents may try to use the information about me. They could turn me into a scapegoat. It may already be happening with a parent. I don’t know.

I just want to be a positive role model for other autistic kids. Show them that we can overcome our sensitivities, and our hurdles. It is difficult, but not impossible. But some individuals will intentionally complicate things for us. They add to our regular struggles.

So the question opens up, for my next school I go to. Do I remain open about my Autism, or try to hide it again?

Autism Month and Me

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I know I missed posting on Autism Day. I have been overwhelmed a lot lately. A lot is happening, and some of it is happening too fast. This causes problems with routines, and overthinking.

April is Autism Month. I am glad we have a whole month, and am hoping the world keeps it going for the future, but the world in 2025 is a scary place. I am desperately avoiding News, but that is not always possible.

April 2nd used to be called “Autism Awareness Day”, and then for a while it was called “Autism Acceptance Day.” Now is it just “Autism Day”.

“Why the changes?” you say. Years ago, an organization was founded and brought awareness of autism to the majority of the world. I will not name the organization for now, but if you look up the puzzle piece you will easily find it. There were no Autistic people involved in the organization, but they did what they could to try to understand autism, and bring awareness to people. They were directly involved in creating “Autism Awareness Day” and encouraged people to wear Blue shirts on that day.

The world has since changed. That organization is still around, but had been focusing on ways to “cure” autism. because they feel that it, and us in return, are a disease. as expected this has created a huge rift. Remember there were no actually autistic people on the board of the organization. But we don’t want to lose a day that the world recognizes us and tries to understand us. So many of us pushed for the new name of “Autism Acceptance Day.”

The world keeps changing, and we all are learning more about what it means to be autistic, and what autism entails. I myself was diagnosed as HSP (Hyper Sensitive Person) and autistic as a child. But nobody could tell me what that meant. The only child therapist in town told my mother that I would be smart, but slow. (Both stereotypes of the time).

I never knew why I had to see councilors in school on a regular basis. I was 30 years old when I finally started to piece things together. Because nobody in my life knew what it meant. And then It took me a decade to figure out how to work around the difficulties I was having. A process I am still figuring out, mostly on my own.

We are now at the spot where, Awareness is there. Everyone knows autism exists. But there is a huge amount of misinformation out there. Acceptance is slowly happening, but the world doesn’t like that word, “acceptance.” It is now viewed as “putting up with,” which is not the same.

So we don’t want the world to put up with us. We want the world to acknowledge that we exist, and, like other groups in the world, help us to be productive members of society. Stop gate-keeping things.

One of the problems with Autism though is that it is a spectrum. Every Autist (Autistic person) has special needs, and requires different help. Some of us need a lot of support, and some of us only need that support sometimes.

“But Chad,” you say again, “What support do you need? You are always so grounded.” Ok, you might not say this if you know me…. but I felt I should help you understand myself and some of the things I need support with.

Time to think. Every time someone comes to me out of the blue and asks “Do you need help?” I am thrown off guard. I cannot process this and whatever is happening around me so I will 99% of the time say “No.” its fast, it clears up my mind and I can continue to try and process what is happening around me. EVEN IF I NEED HELP I cannot name what I need without time to stop everything I am doing and think it out.

This also causes severe case of imposter syndrome, when my team is able to go much faster with their classes, and I am still planning out my classes and organizations.

Routines: I love the school I am at, but I hate the 6 days rotating cycle system. I cannot get into routines. I am never sure where I am supposed to be, what I am supposed to be doing, and how much time I have to do it in. I have monthly cycles, and weekly cycles I down pat, mostly. But planning around yet another cycle requires paperwork, and lots of it. But then I spend more time planning what I am supposed to be doing, and not having the time to actually do it.

When routines change last minute. (Oh we don’t have music class today, we have a last minute assembly) I get lost, confused and panicky. I need information about changes as early as possible.

Time: Being late makes me panic. I can mostly fix this with timed alarms on my phone. I always warn myself 5 minutes before something should start or end, otherwise I will be late, and then My brain goes into panic. My wife and I differ on this. She is eternally running late, and I am panicking because of this.

Organization: My wife is my life saver. I do not know where things are, in my home. I might use something 100 times a week, but ask me to find it in a supermarket and I am lost. All Ketchup bottles look the same to me, for example. If I go to the supply room for something, I will not find it unless I go around the room 5 times, even if I got it from there the day before. And the more on my mind, the worse this gets.

I often need help organizing my classroom and workspace. But I need to be involved so I can make notes of where things are moved to.

Style: People always compliment me on my shirts, and the colors of my clothes. 100% my wife. When I started out as a young adult, I wore silk screened Hawaiian shirts (Mostly with Superheroes on them) and Cargo shorts everywhere I went. I also wore a black fedora. I am not saying I would wear that specific style now, but I would literally grab the first thing from my closet and put it on. I do not understand fashion. Why people wear certain clothing together or which accessories with what completely eludes my mind.

Voices: I can handle 2 or 3 people talking at once, but no more. I have had days where I had to sit, and close my eyes for a moment, so I could focus on 1 person talking to me out of a room full of people. In a class I depend heavily on the children to help me by raising their hands. I cannot differentiate voices, so I don’t know who is talking to me unless there is a visual cue. Voice styles (Accents and things) I do recognize, but often there is not enough variance in a class of 20 children to use this to identify everyone.

Noise: Too much noise makes it impossible for me to think. If there is a class happening in my room, I cannot mark papers or do anything that requires thought. I need to put my headphones on, and block out sound. But When I put on my Headphones, everyone wants to talk to me!

Food: If I could get our cafeteria to always have penne bolognese and green salad, I would be forever grateful. But it doesn’t work. here is a list of things I cannot eat in public because of many different reasons.

  • noodles. (not Pasta, but long noodles)
  • wet meat with bones (ribs, or in soups and stews, fish)
  • foods with sauce I have to touch with my fingers.
  • mashed stuff
  • food that looks like body parts (I’m looking at you Eye-ball rambutans….)
  • Stinky food
  • Spicy food

I am considered a “Low support” autistic. Some of us suffer shut downs, melt downs and worse from the things I mentioned and more. But people, myself included, don’t always understand what is happening and treat it like a choice.

I think I may be off topic, let me realign.

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I believe I was trying to show how understanding that we need support, and just because you don’t notice it, does not mean that its not there. So this month, please just be kind to all, Autist or not. and if it looks like someone is struggling, jump in to help. If you ask, during chaos, be aware that we may need help and just cannot process what you are saying, let alone an answer. Give us a moment to answer, and please just care.

Happy Autism Month everyone.