Life

What can I do?

I can’t think.

Sometimes things become bigger than they should. I get into a spot where I am trying to process what is happening. I am trying to make sure I am making the right decisions for everyone, but I can’t think fast enough. Thing move faster than I can process.

Often at the end of the day, I am exhausted. After I drop the children off at the gate, I need time to reflect, or process. I know I have to write a notice home to parents. sometimes it is for the whole group. Sometimes is is individual parents, to praise or inform of difficulties their child has had. If it has been a difficult day, I cannot do this immediately. I need time to process. What did I do right, or wrong? What can I do better next time? Could I have done better? How? What do I need to do to help these kids?

One of the things I have to unlearn is that it is not always my fault. Growing up, All miscommunications where blamed on me. I was not clear enough. I didn’t say things fast enough. I wasn’t assertive enough. I was too blunt. My tone of voice was wrong. My face was wrong when I was talking.

Often, I have moments in the middle of the day, where what I planned is not working. I have to switch gears and try plan B to explain things. Then Plan C. When Plan H has failed, I am left lost. Sometimes well meaning people come up and ask me what they can do to help.

I am left at a loss usually when this happens. I cannot begin to think about how they can help. I am at a loss. I am still processing what went wrong in the first place. My prepared response is always. “I don’t know right now. Can I get back to you?”

If I get 2 or 3 people asking me back to back, like today. I just… I don’t know. I can’t even think yet..

I know then mean well. At least one does. I may have misread the other’s face. To me their face was saying “Why can’t you do this on your own?” Again, I may be misreading.


I have now taken an hour. let me start again.

Too many things.

When communication isn’t clear, I don’t just feel confused—I start blaming myself. Doubting myself. Spinning. Many autistic people prefer written communication—and I can see why. Emails can be great, because people take time to think about what they are writing. They look back over an email and edit for clarity. Instant Messaging can be terrifying and I still dislike it.

People text brief messages that are often misunderstood, and there is no review before sending them. Last night after work, I got a string of messages from my administrators. No context. No details. Just enough to make me feel like I’d done something horribly wrong.

I spent the whole night replaying the day—trying to figure out where I’d overstepped. I knew what I’d done, but not why it might be a problem.

In the morning, more messages: “Let’s meet.” No explanation.

I asked for clarification. Nothing.

You know how deer freeze in the headlights of an oncoming car? They aren’t being reckless—they’re overwhelmed. Their brains stall, trying to process what’s coming at them. That’s how I felt. Stuck. Not knowing what to think, say, or do.

The meeting was more positive than I had anticipated. But up to that point I was terrified. The team asked how they could help—but the truth is, as I’m still processing, I have no idea what I need. That is something that needs to be planned. If you show up and ask me what I need help with in that moment, I’ll freeze up.

I have students who freeze up like I do, and I’m not always perfect at giving them the time they need. I also have students who try to take advantage of that lag, which helps no one. I want to give them the space I sometimes don’t know how to ask for myself. But like me, they don’t always know what they need in the moment. And like me, they’re still learning. We’re not being difficult—we’re just trying to keep up with a game that moves faster than we can think.

Silent but Violent.

I recently had a conversation about therapy with a good friend. They discussed some of their experiences with it, and I told them that I wished I had been able to have more when I was younger.

I opened up about my memories of childhood, and being told somethings later. Please remember that my memories might not be accurate.

I remember taking speech therapy when I was young. I also remember being told that I didn’t talk until late (like 5 years old late). I remember having a really bad stutter for years. I was told that my mind moved too fast for my mouth to keep up. I was told to try to calm myself before speaking, otherwise I would trip over my words. I remember learning to calm my mind at an early age.

I don’t remember any therapy since.

The thing is I really could have benefited from it. Not just for speech, but for many other things. I opened up to my friend about having violent black outs when I was a young child. I was told multiple times I had nearly strangled my little brother when we were both in diapers. I was told about hitting a child in the head with my metal lunch box. I was told about many other times that I would just change and start hurting people.

I don’t remember these events. But I grew up afraid of myself. I grew up thinking I had a monster inside of me, and that I always had to stay calm and happy. If I didn’t it would get out and hurt people. I spent almost my entire elementary years alone. Partly because I was afraid I would hurt people, partly because I just didn’t know how to make friends.

I spent a lot of time doing quiet things like reading. I used to come home from school and lock myself away with my books. I used to write a lot of fiction. I lost most of those stories, but the ones I have rediscovered I am reworking now. I made my own language including alphabet, vocabulary and rudimentary grammar system. I imagined it was the language of my real world, because I obviously wasn’t from Earth.

The thing is, when you are quiet enough, and watch others enough, you learn. You can learn how to copy them. You can learn their subtle emotional cues. I often feel like I do understand other people’s emotions, but often they are emotions that the other people do not want public. So when I ask them, or try to show care, it scares them.

As I grew up, I learned how to calm myself, mostly. I also learned how to avoid stress. Remember these are self-taught and may not be best practice:

  • Avoid people: The unpredictability of people causes stress.
  • Don’t offer advice or information unless directly asked. People will try to prove you wrong, or will mock your advice.
  • Don’t stand out: Do what your there for, and move on.
  • Find a Safe Space: a quiet place to cry, punch walls, or curl up that nobody will disturb you. You need one for every place you go to. Please remember my generation was not allowed to wear headphones anywhere growing up. We really had nothing we could do to block out sounds, jeers or other sensations at school or in public places.
  • Stuffed Toys are amazing. Soft things help hide fears, and emotions.
  • Count & Breathe: I still use this one. I sit, or lean against something. Close my eyes, and count from one to 10 focusing on the numbers, and my breathing. If I get to 10, I count back down to 1. If I have completed up and down, and am still standing, I sit, and just focus on controlled breathing. I sometimes have to cover my ears at this point to give me reprieve and focus on the breathing.

I think My violent outbursts when I was young may have been caused by over stimulation. Too many things happening, and no way to stop it. so I would black out. (And my body would try to get away from the disturbance). But I honestly don’t know.

In my older years now, I am more in control of things, and have some tools in place to help. So I no longer have blackouts. I do still have times I cannot speak. These come rarely. I try to use my own experiences to help the children around me, but I find it harder to explain to other adults why the children may be acting up. Many of them just think the children are over reacting to things. I don’t wish to yell at them, so I will often just say I will talk with the child.

Children don’t learn in a vacuum. And they don’t suddenly stop feeling their emotions because it inconveniences others. It can be a hard, long process for them. Unfortunately as an educator, all I can do sometimes is sit with them, and try to let them know they are in a safe space.

Brain Fog

On Monday I came home, curled up on my sofa in a blanket and turned a religious documentary on. Then I closed my eyes and just lay there. I use the show as a type of white noise to lull me to sleep. Regular white noise gives me headaches. However, if I can have a single human voice to listen to, I can begin to relax.

When I have Brain Fog, its like standing in an actual fog. I know the world is out there, but I cannot connect with it. I feel like my mind is pushing through taffy, and the more I push the more difficult it becomes. So I need to find ways to just shut down for a while. I can’t talk much, but I can listen. Its best if It is a single human voice to listen to. I often choose documentaries. Their voices are calm and soothing.

I have been asked by a couple of people about this lately, which sparked the topic. My daughter, who is very good about asking if I have the energy to play with her each day. If I need to say no, she plays in her bedroom. If I say yes, she brings her toys out to me and we play. She was asking about my blanket and my show on Monday.

I tried my best to explain. But I am sure I was not clear. I was groggy, and trying to make it simple for her to understand. I told her something about when I have had a lot of people needing me. They are either trying to get my attention or just being too overwhelming around me all day. I need the rest.

I have my rocking chair, But don’t get to use it much this semester. I have been finding myself trying to make time to sit in it. This has led to a lower productivity. I have more work right now, and less time. I have more classes. I have more events to get ready for. I also have more homework to check. There is more classroom designing to do. It seems there is more of everything.

I get so lost that I sometimes forget to turn on my music with my headphones. I will just sit there with the noise canceling headphones on, and stare at my workload for 5~20 minutes.

My other place I have discussed it is on Reddit. I joined the autistic community there. I have been giving advice to autists who are 1/2 my age or less. I also offer emotional support to this group. And one was asking everyone how they deal with brain fog. So I explained. I think it would be better with a weighted blanket, but I don’t have one right now.

Tuesday and Wednesday have been only slightly better than Monday.