Life

Brain Fog

On Monday I came home, curled up on my sofa in a blanket and turned a religious documentary on. Then I closed my eyes and just lay there. I use the show as a type of white noise to lull me to sleep. Regular white noise gives me headaches. However, if I can have a single human voice to listen to, I can begin to relax.

When I have Brain Fog, its like standing in an actual fog. I know the world is out there, but I cannot connect with it. I feel like my mind is pushing through taffy, and the more I push the more difficult it becomes. So I need to find ways to just shut down for a while. I can’t talk much, but I can listen. Its best if It is a single human voice to listen to. I often choose documentaries. Their voices are calm and soothing.

I have been asked by a couple of people about this lately, which sparked the topic. My daughter, who is very good about asking if I have the energy to play with her each day. If I need to say no, she plays in her bedroom. If I say yes, she brings her toys out to me and we play. She was asking about my blanket and my show on Monday.

I tried my best to explain. But I am sure I was not clear. I was groggy, and trying to make it simple for her to understand. I told her something about when I have had a lot of people needing me. They are either trying to get my attention or just being too overwhelming around me all day. I need the rest.

I have my rocking chair, But don’t get to use it much this semester. I have been finding myself trying to make time to sit in it. This has led to a lower productivity. I have more work right now, and less time. I have more classes. I have more events to get ready for. I also have more homework to check. There is more classroom designing to do. It seems there is more of everything.

I get so lost that I sometimes forget to turn on my music with my headphones. I will just sit there with the noise canceling headphones on, and stare at my workload for 5~20 minutes.

My other place I have discussed it is on Reddit. I joined the autistic community there. I have been giving advice to autists who are 1/2 my age or less. I also offer emotional support to this group. And one was asking everyone how they deal with brain fog. So I explained. I think it would be better with a weighted blanket, but I don’t have one right now.

Tuesday and Wednesday have been only slightly better than Monday.

Special

Your not dumb, your just special.

Well aren’t you just special.

Your so special they have Olympics for people like you.

Special kids can’t play with us ordinary kids.

The word special was used to replace the word retarded. Case by case. when people call someone special, they don’t mean it in a good way. Special gets ingrained in our minds along with the many other words people use to describe us. lazy, dumb, slow, stupid, retarded, a monster. Autistic kids grow up hearing these things all the time. and we start to believe them.

Which is ironic, because when I was a young person I started off believing that Special was something you loved more. I had a special bear named Trevor. I had special games I loved to play. I had special books I kept in a special place.

But then you get the school. and for the next 12 years Special sucks.

I wish it ended there, but adult life can be just as hard.

I know I have a hard time communicating some things to people. Heck, certain topics that are normal for some people give me a panic attack to bring up.

How are you? Does this person want a real answer or just an acknowledgment of my existence?

What’s wrong? Where do I start? This could be a 40 minute info dump.

But other things like just talking with a person who is over you in an organization can be hard. I really like my principal, he’s a great guy, and has been on my side since I got here. But, I still have a panic attack if he initiates conversations or asks to talk.

Because it is now ingrained into my head that I screwed up somehow, and need to be better. But no matter how I try, I can’t. Why? Because I’m Special.

I have been trying to help my students do better with their relationships. Teach them how to help be more empathic and welcoming. some are getting it, but others I just can’t connect with, and I SHOULD be able to. Other teachers can.

One of my kids as internalized lazy because other teachers and his parents have been calling him that for years. But I see his struggles. He needs help being redirected, and needs a distraction free area. But the real world doesn’t offer that, and most classrooms don’t either. Not without the label of Special.

Sorry, no focus on today’s article, just needed to type to stop crying.

Thank you all for reading.

Why is “Everyone’s a little Autistic” so painful?

This is a phrase I heard about online, and I thought it was silly. I saw Autistic Influencers talking about this. (Yes I just took a 2 minute break to remember the term Influencer). Then earlier this year, while talking about my family and some of the struggles we have had, someone said it.

I was talking about my children, specifically my daughter. About how the struggles I see her going through reminded me of some of the things I went through. I was talking to them about some of the struggles, that they did not see, and then the aftermath when we got home. I talked about my daughter melting down after school, when she got home and felt safe. About how she’s starting to feel the itchiness of her clothing fabric, and her blankets. About her smell sensitivity.

Then the words came through, “I believe everyone is a bit autistic.” It felt like being hit with a brick. I was sure the person who said it was trying to be reassuring, but it did not feel like it. I just stopped talking and looked at them, confused and lost. “It’s a spectrum, right? so everyone is on that spectrum.”

My heart sank. I did not know how to explain this to them, and probably could not even now. Not face to face.

The Autistic spectrum, is not the same type of thing as the LGBTQ+ rainbow. The Sexual preference rainbow does include hetrosexuality (I believe, let me know if I am wrong). All types of love between consenting adults, or no physical love, fit on their rainbow. it is designed to include everyone in an all encompassing beautiful spectrum of color.

The Autistic spectrum is not referencing a rainbow in the same way. The Autistic Spectrum references the millions of light-waves that make it up. Some struggles are easy to see, like Red, Orange and Yellow. Some of our difficulties are not easy to see like Ultraviolet, and infrared. They are part of the light spectrum, but are not visible to the naked eye. Some of our struggles are so hidden, like x-rays, that you only know they are there by their effect on other parts of our life.

To say that everyone is a little autistic, is to tell an autistic person that their struggles are so minor, that everyone has them. Some of us cannot talk, or can only talk in very specific situations. But hey, that’s OK because cousin Bob can’t speak in Germany, he doesn’t speak German. Not the same.

Some of us cannot identify faces unless we are extremely familiar with them. I am like this. But that’s ok, Your sister Jane only remembers actors by their most famous character. It’s not the same.

Some of us cannot go outside because of light sensitivity or sound sensitivity, or smell sensitivity. My own mother passes out if she is near certain colognes or perfumes due to her sensitivity. I get massive headaches from flower scents, and perfumes. But it’s the same as your neighbor Jack who just doesn’t like modern music, right? No.

There is a lot of struggles we have that, believe it or not, we fight hard to keep to ourselves. Many of us older generation, have been taught from childhood, that inconveniencing others is the biggest sin. So we have it ingrained into our very psyche to keep these hidden. It is terrifying for many of us to let people see what we experience.

I am glad that I did not fly off the deep end, as my mother would say. The person who told me that they believed this then opened up about how their children, while not autistic, do have developmental difficulties. I guess, as parents, you always wish for your children to have as easy a life as you can. And if you are trying to normalize developmental difficulties to help your child not feel like an outsider, I applaud you. I, too, am trying to normalize this for the sake of my children.

While I want my children to understand that many people will not experience the things they do. We cannot judge their difficulties, or actions. While, yes, everyone has difficulties, they are different. Not all of them fall on the spectrum. Not all of them fall on the rainbow. And for some, these difficulties may seem insurmountable. The best we can do, is try. Be there for people, and let our close friends and family know what struggles we have.

I have spent many years hiding this aspect of myself. It has only been the last 2 years I have started to open up about Autism. I tried to talk to a very good friend about it 10 years ago, and was met with the comments about not appearing autistic, and how I must be “High functioning.” It did hurt to hear this, and it made it impossible to tell anyone again for years.

The next time I brought it up, was to correct misinformation in a topic we were teaching at that school. My coworker then used the information to convince my department head that I was unsuitable for being Head Teacher, and I was replaced. I had been doing the job well for years at that point, but it made no difference. That man then spent two years purposefully making life difficult for me. I had nightmares about him for 2 years after I left that school.

So when I say it is ingrained in us to hide, these are the reasons why. We are shown that it is a weakness, and that it will be either ignored, or used as a weapon against us. It is really hard to unlearn that. But If I want my children to live in a world that is better, I have to reveal. I have to reveal why things like “Everyone is autistic” hurts. Why our micro-stimming or odd ticks help us and should not be used against us. I have to lead by example.

And that is the most horrifying thing in the darkest areas of my brain. Letting it all out, for the world to see. I am not ready to share my nightmares, even if I must eventually.