Life

Why I Write.

I write a lot. I have for most of my life. Its therapeutic.

For most of my life, I have had difficulty expressing myself.
Shocker, I know.
I can explain a lot of things, but if I have to explain myself to people, no dice. My mind freezes up when people are there. I fill up with questions, and self doubt. Am I right to feel this way? Will others understand? Did I do the right thing?

Autistics are often second guessing ourselves because most of us have been gaslit by those around us for so long, that we really don’t know what to think or feel about ourselves. If you are often told to Just don’t do the thing. The thing you have been trying not to do, and nobody else seems to need to do. You start to ask yourself, Why is it so easy for them? What is wrong with me?

My solution, when I was about 8 was to write stuff down. It might have been earlier, but I doubt it.

I used to get teased by everyone for what I said or did. My own brother and father made sure I wouldn’t forget certain phonetic slip ups (Angel & Angle for example) for years. So I didn’t speak up much, and when I did people often would not understand. And if I got upset, I would end up hurting people, so I turned to writing things.

Since I felt like an Alien most of the time. I made up my own alphabet. I didn’t have the ability at the time to make my own language, but this was close. I used the alphabet to write notes just for me. I wrote stories in it, really simple stories, but still stories. I would write my random facts, or interesting notes in it. Then nobody could read it except for me. Unless they found my conversion key in my notebook. I did not, yet know how to write my feelings down. I didn’t even know what my feelings where most of the time, which made it hard to write them down.

I started to write fiction when I was about 10. I was an avid reader of the Xanth Series of books from Piers Anthony. So I created my own magical Land called “Crest” which was shaped like my Province of British Columbia. I wrote stories of a princess, and her misadventures. In my stories people would often lie to her or trick her, and she would have to find a way to do something despite the trick.

At that time in life, I thought people were naturally nicer to girls, and I envied this a lot. In a way I wanted to be that princess.
For those who will go there, I was 10, I did not want to wear dresses, or make-up, I wanted people to like me, and thought people were naturally nicer to girls.

When I was in Middle school, I wrote super hero stories, often of the style of Power Rangers or Sailor Moon. I loved the idea of regular people becoming superheroes and upholding what is right. I still believe Heroes should be heroic, and do what is right for morality sake. I do not enjoy the grim dark, or “realistic” heroes, not do I enjoy Anti-Heroes.

I wanted someone to show up and help me with the struggles I was having. The ones that I didn’t know how to voice. To step between me and the people who would tease me or ostracise me. I used to dream that superman would fly me to my real home world, or that I would have his powers, so I could fly away when things got too hard. I used to draw comics for some of them too, but that stopped when someone found them and then I got teased real bad for it.

So I moved back to Fantasy. The genre that nobody could have a problem with, right? Well just in case I would hide my notebooks. I got heavy into Mythology, and researched Egyptian, Greek, Roman, and Norse Myths. Then I would integrate these into my stories. At this time, I was reading a lot of Anne McCaffrey Books.

In High school I started a journal. My English teacher recommended it. I didn’t write in it often, but instead it turned into a half-scrap book half-diary. I found it easier to convey my thoughts and feelings with random leaves, photos, ticket stubs, and random things.

I had a bazooka Joe wrapper in my diary for a long time, because someone gave me the gum, and I thought it would lead to a friendship. I filled those up quickly, and had stacks of them in my room.

If you looked through one of my journals, you would have seen pictures from places I had been, blades of grass, used phone cards, a complete list of power coins from Power Rangers, sketches of a game I was programming, random bits of code. a short essay on why people would want to Hide-a bed. (An on going curiosity for me from Grades 10~12) random ideoms I had picked up and were questioning, like Isn’t “Head over Heels” the way you should be standing? how can you fall that way? It was chaotic, and beautiful.

I didn’t start writing my experiences as non-fiction until I was well into adult hood. I didn’t know how. I think I was in my 30s when I started. I believe I started with my Live Journal, which was like an online diary.

Then I created my WordPress (chadwickbaldwin.blog), and my WeChat Official Account. (Accessable only in Wechat).

I manage the Website, The WeChat Account, am Writing 2 novels, and manage the school newspaper right now.

All of this is still doing the same job I started at: organizing my thoughts.

You see Written word can be edited, reorganized, and clarified in a way that spoken cannot. I can take as much time as I need to put an idea down, and try to make it clear. (Or ramble on). But I cannot do this same self-organization when speaking. Once it is out of my mouth, it is up to the reciever to interpret my intentions. Sometimes what has been heard is very different from what was in my head, and once you screw up, thats it for a lot of people. No explanation, or correction can happen.

I still write a lot, and when I cannot write for long periods of time, I get more disorganized and overstimulated. And when I feel the emotions around me, it gets worse. I write, and rewrite things over and over, almost every day for 2 or 3 hours now. The stresses might not be the same as I grow, but somethings never truely disappear. As I sit and ponder Did I handle this right? What should I have done? Am I doing more harm than good? Why? How can I do better?

Communication is not always straight forward, and sometimes to get to the underlying feeling, you have to take a lot of detours. The message might not be clear the first time you read it, but it is there.

I hope, truely hope and pray, that those around me that don’t know how to express themselves, or don’t know who to explain themselves without hurting themselves or people near them embrace writing. You don’t need to be the best at spelling or grammar, just start typing or writing with a pen whatevre comes out.

And I truly hope and pray that nobody tells you what you can or cannot write about in your own diary.

Fashion

As an adult I am often complemented for my clothes. I have nice work clothes. I like them. But I always have to explain, that if I look nice or not, is not my doing. My wife is my fashion expert. She chooses my work clothes for me, each day, she even buys them for me, and there is a very good reason for this.

Fashion and I don’t understand each other. I have always had issues with what to wear. What goes where, etc. Nowadays I joke about it, but when I was young, it was a serious problem. Below are some short memories I have about myself and clothes.

I remember having the letters R and L on the top of my shoes. I think I needed them until high-school. I could not determine left shoes from right shoes. They looked the same to me. They mostly felt the same to me.and I could not understand why it was important to put them on the “correct” foot until I was about 15 years old.

There was a day that I woke up, and had to dress myself. I looked at my shirt drawer, and I got really confused. What type of day was it going to be? I was 8 years old I think, but just in case, I started putting shirts on by what I might need. I ended up taking all of my shirts out of the drawer and putting them on over top of each other. I was shocked when I was told by my mom, to go change into 1 shirt, and I was left with the same original problem. My brother helped me finally choose a shirt that day.

One year in elementary, Grade 1 I think. (It may have been grade 4 or 5) We had our photo day at school, and had to dress up. I was given this nice brown corduroy suit jacket and pants. I wore a tie, and I felt so respectable that day. It made me feel so good to be dressed up like that. So I decided i would keep wearing it, everyday. I think I made it to 1 week before other kids teasing finally got through and I stopped wearing it.

In High school, and well into my mid twenties, i wore a fedora. (from around 1993~2004). I had a few fedoras for different clothes. I had a black one that I had bolted hard drive parts to, giving it a steam-punk~ish look. I had a brown one I wore with my leather jacket in winter. I had a grey one I would wear casually. Keep in mind this was before a few boy bands began to bring back the hat. My thought pattern was the Fedora, and similar hats were gentleman hats. They were worn in a gentler time by gentlemen. I still have some fedoras now, but many of them have been misplaced.

When I started teaching, I often wore brightly colored, silk screened Hawaiian style shirts with superheroes on them to work. I would show up to my school with my shirts wide open, and a t-shirt underneath. I would partner these with khaki or black cargo pants. I liked the feel of the shirts, I liked the bright colors as they relaxed me, and had no concept that I was the only teacher dressed unprofessionally. I blame the language barrier, or cultural barriers. The Korean school I worked at just didn’t know how to broach the subject.

Now I’m not saying I have no say in what I wear. But my wife helps me be more aware. For example, when my old school would have spirit week, I was adamant that I needed clothes of the different house colors. Many schools over here have adopted the British House system. (See Harry Potter if you don’t know). What I had was goofy t-shirts. While some of the staff took it and ran with it, by wearing wigs, funny ties, feather boas, and other outlandish things. I couldn’t do that. See I may have bad fashion sense, but I can’t make myself wear outlandish things either. They feel unauthentic, and overwhelming, and I just can’t do it for more than an hour. My wife helped me find some really nice sliky work shirts for every color of the rainbow so that I could still participate.

Even costumes for like halloween. I need to wear something authentic. I often dress as Sherlock Holmes, or Pirates, or knights. I won’t wear the fake blood, or wigs, or anything like that. I do still need help with costumes though.

I remember once when I was a child, I went trick or treating as Wonder Woman. And now a young boy doing so may be more acceptable. I had no idea that it wasn’t at that time. My brothers were Superman and Batman, so i was Wonder Woman.

In High school, I had a friend who was a bit goth. He liked black trench coats, and to talk about vampires. So I dressed up as him for halloween. He told me flat out it was dis respectful. He was larger than me, and I had stuffed my waist with a pillow to fill out, but It never occurred to me that it would be upsetting. I was sure he would like it.

I once made a Gold Ranger Costume for Halloween in Highschool. The original Gold Ranger from Power Rangers Zeo. I had a wooden Power Staff my Step-father had helped me build. I had made the tight fitting costume and chest shield, even the helmet. I was Grade 11. Power Rangers was still considered a Kids show. I got a lot of compliments on the costume, not realizing until later, that I was showing my classmates that i watched “Kids Shows” instead of Age appropriate things like “Friends” or “Seinfeld” which I, to this day, do not understand.

I still have trouble with “Special Event” clothes. Clothes that sit in my closet, that I never get to wear because they are for special events. I have a few full business suits, that No longer fit, because I outgrew them before I could wear them a second time. I have shirts, casual and business, that are in the same boat. But I respect that my wife understands these things better than me. and so they sit waiting for that special event.

Needless to say, with all my difficulties with clothes, I am much happier just relaxing at home, where I can stay in my pajamas, or lounge in my indoor clothes, clothes that nobody needs to see, and can look as mismatched as my thoughts.

Shopping – Redux

About a year ago I wrote about my experiences in shopping. I still struggle with this, but I thought I would write again about this difficulty after this weekend’s attempts to shop.

Since we moved to ShenZhen we have been mostly getting our groceries at the local Walmart. I am glad that we have one here. Are there other options? Yes. Have we found or experienced many? Not yet.

During the summer, we were able to go shopping mostly during the week. If you are not aware, weekend shopping can be a bit of a nightmare.

Since work is starting up again, we have to get back into the routine of shopping on the weekend, and slow down on the food delivery. In order to limit difficulties, My wife and I put our youngest into a playground nearby, and had our older daughter watch her while she drew. This way we would only have 2 of us to try to push through the crowds.

Walmart was busy. Back to school sales drew in a lot of extra people, yes. But a lot of extra on top of the regular chaos that is the weekend shopping.

I am lucky that they do not test their air fresheners or other perfumes. The entire upper floor, filled with household goods, was mostly scent free. But once we moved down to the food floor, My brain went on high alert. Loud noise and crowds do not a friend make with the autistic brain.

My wife was able to slide through the crowds easily, and I would get cut off, or have people move way to close for comfort. Aisles were filled with people, and hard to navigate. Often times I would just stand in the main Aisle, while my wife grabbed things. Unfortunately that meant I moved slowly, to not run into people and to keep distance, and stopped a lot. This meant I was prime prey for the food samplers.

I know a lot of people love the food samples at supermarkets. And I do periodically, but not often. I have texture issues with food, smell issues with food, and tast issues with food. So it is rare that I find a sample I am willing to try. On top of that, in a crowded market, all my senses are in overdrive. So for an employee to tap me on the shoulder to offer food, or to push a random thing on a stick or a cup of odd liquid into my face as I am trying to maneuver away from people can be extremely frustrating.

We had an employee rush up to my cart, and put 2 packs of shrimp right in my cart so she could take a picture. No asking, just boom there she was with things pushed into my cart. She then removed them from the cart after the photo, but it was startling.

Clear Headed issues.

Luckily, my wife was happy to lead the way through sections and Checked that I was ok multiple times. She could see it on my face. But in crowds like that, another issue that happens, is I cannot think straight.

Normally If I am shopping, I can look at products, check the expiration date, or the price and spend a bit of time deciding which one I need. If I am overstimulated, I will often grab the first thing that matches my needs. We need bacon? Great, there it is, done, I can rush out of this section. Is it our brand? is it the right amount? is it a good price? I don’t know, but I escaped that crowd for now.

Cost of groceries can be as much as 50% higher than normal because of this.

Arm space.

One of the reason My wife and I enjoy Walmart and other wester style shops, is not just number of customers. I like to have space to move around. If the aisles are too narrow, I don’t feel comfortable going down them. Even if there is no other person in the aisle, I feel like a bull in a pottery shop. I know if I turn, or look around, I will knock something off the shelf. So I have to shuffle sideways into the aisle, or head directly through.

This is especially hard since I am usually carrying a backpack that has our shopping bags and other essentials in it. (Motion sickness things for my family, tissues, etc.)

Smells

I mentioned earlier that I am glad that Walmart doesn’t spray their perfumes and things into the air. There are, however many shops that burn incense, and spray perfumes or fresheners into the air. These smells often give me headaches, but the stronger ones will actually cause my eyes to burn. A few times I had to avoid people who were wearing a lot of scents while shopping. (And sometimes at work) because I just cannot breathe, or see, and need headache meds.

Solutions vs reality.

Some of my difficulties have possible solutions, but they are not always practical.

Headphones: For my sound sensitivity, I could wear my headphones. They block out a lot of the sound. If I was alone, I would do this. But I was raised with the following “etiquette” It is rude to wear headphones when out with people. If I am with my family, or friends, it is rude to wear headphones. They need to communicate with me too, and it is difficult to do that with headphones on.

Weekday Shopping: For my spacial awareness, i could shop with my wife after school. So there will be less people. There are days I may have the energy to do this. But typically after school I have been needed to help my daughter with her homework. I also need my down time to process the day or i will not be able to fall asleep at night.

Wife Shop during weekdays: Some people have suggested that My wife shop during weekdays on her own. I am not the only one in my family with developmental difficulties. My wife suffers from extreme anxiety when she has to go out or do things on her own. She needs a comfort person with her just to leave the house. She has not found someone outside the family yet that she is that comfortable with.

Shopping List: I have several apps on my phone that keep me organized. 1 is a shopping list app. I can and often do use it to keep trak of the things I have to buy. this can include product names, and values. Yes, I may have to stand in the crowd to ge the right stuff, but having it easily visible, helps remove some processing power from me, and I can focus on staying safe.

Health Apps: Another solution I have been known to use is my Health App’s Breathing excercise. I can stand away from people and focus on the breathing, either by closing my eyes, or by focusing on the expanding and contracting bubble in the app.