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Scratching

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I have near permanent wounds on my body. Places that I won’t let completely heal. Not because I want to have these, but because I scratch.

Stimming is a way for autistic people to manage themselves. It is a repeated action that we do to either move our focus from a sensation we cannot handle, or to help ground us back in reality when we need to focus our minds. Stimming comes in all sorts of activities, one of the most common ones is the hand flapping. Each stim we design helps us with one aspect of our life.

My son would flap his hands in class when he was in elementary school. The teacher didn’t know what was happening, and I didn’t register it was a problem, so I just told her to be patient.

When things are getting too serious and boring, like standing at a school meeting, I may start to stim. in these situations I may just make a silyl face (often tongue out with crossed eyes). When I’m a bit nervous or uncomfortable, I may do a short dance. When I am thinking or processing new information, I scratch.

I sometimes scratch my head. This sounds normal, but It’s not. I put both of my hands on my scalp and dig my fingers in and move them back and forth vigorously. If I happen to feel something our of the ordinary, up there, I will dig. There have been days in my past, where I found a bug bite, or bump from an old scar, and completely dug it up, leaving a section of my hair matted in blood.

Similarly when I scratch my arms or legs, I tend to pick at bug bites, pimples, scars, and wounds. I don’t do this consciously. I will be lost in thought and then I realise my arm is bleeding, and I have to get a band aid or tissue.

There was a time when I was a teenager, that I found a wart on my finger. (I think it was a wart), and I used a pen knife to slowly remove it. It took me a week to remove it completely. I would cut a section off, then bandage it up, then the next day start picking at it, (and nibbling at it), then cut a bit more off, and bandage it up. It never occured to me to talk to a doctor about this. It was just part of my adjusting myself.

I would never have seriously hurt myself, and I still would never. This however, is hard to explain to people when you have dried blood in your hair, or you are explaining something to your coworker, and you accidentally pop a scab off you rarm, and need a tissue or bandage.

If I have to try to rein it in, so it’s less obvious, I pick at my fingernails. I will run my finger along my fingernails, and if I find any edgers, or irregularities, I will just start picking at it. This leads to part of my nail peeling off, and sometimes, my finger bleeding. Often, however, it just leads to more unven finger nails

There was a time In Korea when I became obsessed with carving my nail. I put my thumb in my mouth, and rubbed it left and right on my front teeth. Over a week of this, I had carved a dent into my thumb nail. and then I would watch it as it grew down my thumb, finally when the dent reached the clippable area, I clipped it and started the process over.

I am often told to “Just stop picking” and I wish It was that simple. If it was a conscious action, it might be possible. But stimming is often an unconscious thing. Sometimes you just do things, scratching, cross eyes, or dancing. and the more you try to ignore the urge, the harder it can become. It is usually best to just do the action and get it out of the way so you can be regulated and move back on task.

To an observer, many of these stimms may seem unacceptable, or even harmful. Imagine standing in a line with all your coworkers for a “Sport Day” parade, and you start stimming by dancing or making faces. It is seen as rude and inappropriate. However, to an understanding individual, they know that I, or other Autistics may not be able to focus, or handle the situations overwhelming sensations without this.

When my students start doing something that could be a stim, I watch and observe before I react. If it is not harmful, then I may not react quickly. Sometimes, it takes me a few weeks to begin dealing with a situation to help the child. I don’t want students to self-harm, even if it is small like mine. I need to be careful that I keep dangerous behaviour at bay while still allowing the child to stim as a way to regulate themselves. If it is an overwhelm, I may be able to remove the cause, but otherwise we want the child to learn how to help themselves with this.

Shopping – Redux

About a year ago I wrote about my experiences in shopping. I still struggle with this, but I thought I would write again about this difficulty after this weekend’s attempts to shop.

Since we moved to ShenZhen we have been mostly getting our groceries at the local Walmart. I am glad that we have one here. Are there other options? Yes. Have we found or experienced many? Not yet.

During the summer, we were able to go shopping mostly during the week. If you are not aware, weekend shopping can be a bit of a nightmare.

Since work is starting up again, we have to get back into the routine of shopping on the weekend, and slow down on the food delivery. In order to limit difficulties, My wife and I put our youngest into a playground nearby, and had our older daughter watch her while she drew. This way we would only have 2 of us to try to push through the crowds.

Walmart was busy. Back to school sales drew in a lot of extra people, yes. But a lot of extra on top of the regular chaos that is the weekend shopping.

I am lucky that they do not test their air fresheners or other perfumes. The entire upper floor, filled with household goods, was mostly scent free. But once we moved down to the food floor, My brain went on high alert. Loud noise and crowds do not a friend make with the autistic brain.

My wife was able to slide through the crowds easily, and I would get cut off, or have people move way to close for comfort. Aisles were filled with people, and hard to navigate. Often times I would just stand in the main Aisle, while my wife grabbed things. Unfortunately that meant I moved slowly, to not run into people and to keep distance, and stopped a lot. This meant I was prime prey for the food samplers.

I know a lot of people love the food samples at supermarkets. And I do periodically, but not often. I have texture issues with food, smell issues with food, and tast issues with food. So it is rare that I find a sample I am willing to try. On top of that, in a crowded market, all my senses are in overdrive. So for an employee to tap me on the shoulder to offer food, or to push a random thing on a stick or a cup of odd liquid into my face as I am trying to maneuver away from people can be extremely frustrating.

We had an employee rush up to my cart, and put 2 packs of shrimp right in my cart so she could take a picture. No asking, just boom there she was with things pushed into my cart. She then removed them from the cart after the photo, but it was startling.

Clear Headed issues.

Luckily, my wife was happy to lead the way through sections and Checked that I was ok multiple times. She could see it on my face. But in crowds like that, another issue that happens, is I cannot think straight.

Normally If I am shopping, I can look at products, check the expiration date, or the price and spend a bit of time deciding which one I need. If I am overstimulated, I will often grab the first thing that matches my needs. We need bacon? Great, there it is, done, I can rush out of this section. Is it our brand? is it the right amount? is it a good price? I don’t know, but I escaped that crowd for now.

Cost of groceries can be as much as 50% higher than normal because of this.

Arm space.

One of the reason My wife and I enjoy Walmart and other wester style shops, is not just number of customers. I like to have space to move around. If the aisles are too narrow, I don’t feel comfortable going down them. Even if there is no other person in the aisle, I feel like a bull in a pottery shop. I know if I turn, or look around, I will knock something off the shelf. So I have to shuffle sideways into the aisle, or head directly through.

This is especially hard since I am usually carrying a backpack that has our shopping bags and other essentials in it. (Motion sickness things for my family, tissues, etc.)

Smells

I mentioned earlier that I am glad that Walmart doesn’t spray their perfumes and things into the air. There are, however many shops that burn incense, and spray perfumes or fresheners into the air. These smells often give me headaches, but the stronger ones will actually cause my eyes to burn. A few times I had to avoid people who were wearing a lot of scents while shopping. (And sometimes at work) because I just cannot breathe, or see, and need headache meds.

Solutions vs reality.

Some of my difficulties have possible solutions, but they are not always practical.

Headphones: For my sound sensitivity, I could wear my headphones. They block out a lot of the sound. If I was alone, I would do this. But I was raised with the following “etiquette” It is rude to wear headphones when out with people. If I am with my family, or friends, it is rude to wear headphones. They need to communicate with me too, and it is difficult to do that with headphones on.

Weekday Shopping: For my spacial awareness, i could shop with my wife after school. So there will be less people. There are days I may have the energy to do this. But typically after school I have been needed to help my daughter with her homework. I also need my down time to process the day or i will not be able to fall asleep at night.

Wife Shop during weekdays: Some people have suggested that My wife shop during weekdays on her own. I am not the only one in my family with developmental difficulties. My wife suffers from extreme anxiety when she has to go out or do things on her own. She needs a comfort person with her just to leave the house. She has not found someone outside the family yet that she is that comfortable with.

Shopping List: I have several apps on my phone that keep me organized. 1 is a shopping list app. I can and often do use it to keep trak of the things I have to buy. this can include product names, and values. Yes, I may have to stand in the crowd to ge the right stuff, but having it easily visible, helps remove some processing power from me, and I can focus on staying safe.

Health Apps: Another solution I have been known to use is my Health App’s Breathing excercise. I can stand away from people and focus on the breathing, either by closing my eyes, or by focusing on the expanding and contracting bubble in the app.

19 Years – Update

So, after the events that lead to last week’s post, thing have changed.

On our end, we kept trying to find ways to get My wife’s paperwork sped up from the Philippine side. However, due to the typhoons (plural) that hit the country recently, certain government offices were flooded, and closed. (or the area nearby was inaccessible, I’m not sure). So getting a rushed paper copy of the paperwork was quoted as 4~6 weeks to arrive.

We looked into an E-Apostille. And ordered one. 2 problems came up from that. Apparently China doesn’t accept E-Apostilles, which sucks. The other problem is the method in which an E-Apostille is made. One Government office prints up our paperwork, authenticates it and then MAILS the papers to the Apostille. The Apostille Office then has to scan it, and create the digital apostle form. The Apostille Office doesn’t trust digital copies sent from the government? And then this falls into the whole Manila is flooded problem.

The HR representative from my company had been working on ways to extend my wife’s visa. They were handling this from the China side. She was more successful. We discovered that there is a specialty Immigration office on the far side of the city. This office deals with non standard applications, or problem solving. My wife had an interview with them yesterday. They agreed to extend her current visa 30 days.

So now we have 30 days to finish getting the paperwork.

This morning, My son received our marriage certificate from the government. But it was not Apostilled. And the next available appointment to get an Apostille was end of August. We called the government (again) this morning. They helped us order an Apostilled Marriage Certificate without an appointment. It should be available this week.

So at this point, we seem to be on the way to finally getting my wife a spousal visa. She will finally be legally recognized as family in China, after 19 years.