Author: chadwickbaldwin

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About chadwickbaldwin

A Canadian teacher in China

Masking, and the after effects.

As an autistic, I deeply want to be honest and factual about everything. I want to tell my students that their volume hurts my ears. I want to tell them that I have mini-panic attacks when things fall apart on me, or I cannot find things I just put down. I want to tell them that I need to fidget to think, and that I empathize with the children who need fidget devices, or need to self isolate. I want them to know I need these things, and more. But I can’t.

Every time I think about talking about this, I hear a good friend’s voice in my head reminding me, that the parents of my students are not going to be as open minded as their kids are. If the parents find out that I am neurodivergent, that could spell the end of me at this school, or in this country. And so I mask.

For those who don’t know, masking is where you try your best to act more “normal.” You do this by observing everyone around you, analyzing what they are doing, and possible reasons or motivations as to why, and you copy that behavior if you feel it would help hold up the disguise. If not, you spend time and energy trying to copy behavior you have seen or memorized that would be appropriate.

This can be exhausting as you can imagine, but despite this, it can also hinder sleep. Before I can lay down to sleep, I often run through my day, looking at what I did, and questioning if it was the right thing to do, or not. I need to think about what I should do better next time this comes up. I know I should, but I am also aware that if I ever come across these situations again, i will need to analyze it afterwards again anyways.

Today my principal came to see me, and he asked how I am doing. I thought about telling him about my aunt passing away last week, but I didn’t. I just told him some minor difficulty I am having with my class. I didn’t tell him because, last year I broke down and told him about my mom’s car crash, and subsequent cancer diagnosis. I don’t remember if I told him about my Uncle’s passing, or my other Aunt’s passing last year either. In the last few years I have lost several Aunts. I did talk to him about my brother’s mental health, my worries about my son, and several other things. I feel like If I told him about my aunt, passing or how my mom’s best friend is now terminally ill, it would just be another “bad thing happening to Chad”, and he might start to disbelieve me when I talk about how these things weigh on my mind.

He might think I am making this stuff up to get sympathy, or use it as an excuse for not working as well as I could be, SHOULD be. And if my principal thinks I shouldn’t be letting these things bother me, then I have to analyze why do I? I know I wouldn’t be able to stop them from bothering me, but then I know I would have to add THAT to my mask. I would have to find ways to make it look like they don’t bother me, just so the people around don’t notice me crumbling.

I mask around my principal, as I do with my coworkers. I do it with my students. and I really shouldn’t. If I could open up and let them see the craziness that is me, it could be a positive influence on everyone, especially on a couple of students in my class, who I see struggling with these same things. But I can’t.

I know I should, but I can’t. That fear is always there. That fear of being different, of being rejected, of being ostracized. Or worse the fear of the disbelievers. The “You don’t look/ act autistic.” or the “you can’t be autistic,” or the “You must be the high functioning type / You hide it well.” Do I? I can’t be hiding it well if people tell me that. and what does it mean to hide who you are? is that a positive? No.

After each class I teach, I sit in silence. I don’t even rock in the rocking chair anymore. It’s not private enough anymore. Last year I could get some quiet time in the chair, but this year it is not possible. So, I just hide behind my wall of homework, that never seems to get smaller. I stare into space, and I think to myself about mistakes I made. How I should have don’t things different. How I reacted instead of thinking things through. How I should have handled things differently. I try to hide it by turning on my headphones, then I have an excuse to be zoned out when people invariably come to ask something of me.

after each 45 minute lesson, I need about 20~30 minutes of absolute me time. If I get it I am able to function again, if not I am not at full capacity.

Days like today I don’t get the shut-down time. On days like today a couple of things could happen, and usually do:

  • I lose control of the class, because I have a panic attack about something minor and react instead of think it through.
  • I become short tempered, and get upset very easily. This causes me to lose control of my class.
  • I force myself to become passive, which takes twice as long to accomplish things, but I have the focus of half the class.
  • I have to close my eyes and focus on my breathing every 15 minutes of class time. If I can’t, you guessed it, I can’t think straight and I love control of the class.
  • I get a splitting headache. It’s bad, like itchy brain, or brain on fire, bad. this makes my already slow brain move slower, and it makes me feel sluggish and exhausted.

The worst part about this, is that when I get home, I still need shut down time. In severe cases I have to go to bed, and take a nap for 2~3 hours. In less severe cases I need to do something that requires no effort. Watching Youtube for 2 hours, usually covers this, but if I get interrupted, I need to change the show. Somedays I don’t get this either.

I told myself I would not be responding to parental messages after 5:00. but then I have days like today where something happened at school and parents demand answers, and they need them yesterday. Then I am trying to appease, mask through my messages, and get the incident closed so I can shut-down for a while.

If I am watching a show on YouTube and need to pause it to help my daughter with something, or to answer a question. I lose focus in that show, and need another show or to start over. It can get frustrating. I find subtitles help me focus when there is a lot happening around me. as you may be aware, I have a hard time filtering sound. the TV is the same volume as my wife talking to the kids, as the washing machine. and it makes it impossible to watch, or focus on 1 thing. If I am alone, I can focus on one of my special interests to help relax, but that doesn’t ever happen until after 10:00 in my house.

So that leads me back to where I am now; I have a headache, I was not able to watch today, and needed to mend fences and fix things with parents and children. spending time just reviewing the day in my head before I head to bed.

exhausted.

Meltdown at Work…

Today was a hard day. It started before  I even woke up.

My nightmare last night was sitting amongst a pile of things I was trying to organize and tidy up. But the more I organized, the bigger the mess got. And no matter what I tried, it kept getting bigger and more disorganized.

When I  got to school this morning, things seemed much better. And then my student had a panic attack.  I tried to help,  but I reacted instead of thinking, and it made things worse.

Later, I took him to the nurse and went to eat.  Normally, when I feel bad, I need comfort food.  But today is the day they changed my pasta bolonaise to pasta cabonara.

Then I forgot I had taken my student to the nurse, and I thought I lost him a second time.

It was then it started. My heart began beating irregularly. My mind was everywhere, and I had to be on duty to watch the kids at recess.

I thought I could handle it. I put on my music I trimmed, I paced, but I couldn’t.

I collapsed into a crying twitching mess.

My good friends rescued me and let me go to my rocking chair.

I haven’t had an Autistic meltdown this bad in 10 years. But that is a story for another day..

Understanding the Shopping Experience for Autism

Shopping can be hard. It is hard when we break routine. Certain shopping centers terrify me, others are just uncomfortable enough that I avoid them. Below are things I like and dislike about shopping.

Crowds

Large groups of people in small spaces suffocate me. I become highly aware of how much space is between myself and everyone else. While my wife is able to walk freely between people to grab things, I end up navigating around busy aisles to that I have enough personal space. I end up getting cut off by people running in front of me, which gives me a min-panic attack, and I end up backing up away from people to make space.

There is a shopping center nearby that is 100% below ground, and has tiny aisles so that they can fit everything in. Just the thought of going there is exhausting.

Sound

Often due to the crowds, the noise in these places is pretty intense. I cannot discuss with my wife what we need, or where she is heading off to. I hear a wall of sound, and it is overwhelming. To combat this we use a shopping list app that I can focus on. I just do my best to follow my wife and look at the list.

Many shopping centers have music playing from different departments, the Electronics department will have shows playing, the food department has “Calming” music, the hawkers try to get your attention to buy things or introduce samples. The people talk very loud, the lights buzz, the shopping trolley wheels squeak. all of this gives me a massive headache, and makes it really hard to focus on things. What I need, do I need this extra thing not on my list? I don’t know because I cannot think.

Samples

I like my space. I like being left to do my shopping. So when a lady, or gentleman comes over to offer me samples, that I was moving away from, they invade my space I was trying to keep. Or when there is a sampling that involves cooking, there is invariably a line up for the samples, that block off entire sections of the store. I now have to move back, and reanalyze the lay out of the store to find a safe way to get to where I need to go.

On top of these, if I am shopping with my children, often a sample-provider will walk right up to the kids and give them a sample, no asking permission. I mean what if the child (Who doesn’t speak the language) was allergic to their food? they didn’t check, they just gave, and sometimes I have to bat the food away, or intercept it, and then I look like the bad guy…

I understand that providing samples is an essential part of the business, and I appreciate that. But really…

Re-Arranging or Products, or replacing products.

There are certain products that my wife and I have been buying for years, and when they disappear it is frustrating. Both of us are very particular about the brands and products we buy. Brand C is not a replacement for Brand A. I’m sorry, no. It looks different, it costs different, it tastes different. No.

Its bad enough when a product is moved for a special, and you now have to run around the whole store into aisles you never go into for various reasons, just to find it. But when a Brand or product stops being available all together, and often with no warning. We often go without our favorite dishes when this happens. It may take 2 or three months before we try again. There are dishes that we used to eat all the time, but we have not made in 5 years now because of this issue.

People

Not the same as crowds. If I have had a good experience with the people who work at a place I will shop there, if not I wont. I had an experience at a shop nearby that keeps me from buying food there ever again. One of the meat counter employees asked me for my personal contact information so that he could practice his English. This action caused him to get into a fist fight with another employee.

I have not returned to that meat department in 2 years.

My Favorite Places to Shop

There are two places I enjoy shopping. The reasons are simple, and maybe you can spot them.

Place one is a small shop. think local green grocer. They have a lot of produce and a limited supply of meat. The people are polite, the aisle are narrow, but are organized in a very logical way, so i can easily get to what I need. Products don’t move out of their area. If it is not there, they are out of stock, I can try next time. There is very soft music, but since there are not a lot of people inside at a time, due to it’s narrow aisles, it is quiet.

Place two is a large warehouse style store, but only for food. It has a lot of space in the aisles. There is a lot of variety. Rarely do things move. It is underground, but it doesn’t feel claustrophobic because the aisles are wide enough. The employees don’t approach you, you approach them for help, and they are very nice about this. It is very bright and clean looking, and the entire atmosphere is relaxing.

Around the corner from place two is one of my favorite coffee shops, which is connected to a book store, so it is a nice quiet place to relax.

But of course the best way to shop, for me is online delivery. I don’t need to leave my home, and 95% of the time I get exactly what I ask for.

All of these factors lead to an exhausting experience that unfortunately must be repeated if I wish to survive.