I know I missed posting on Autism Day. I have been overwhelmed a lot lately. A lot is happening, and some of it is happening too fast. This causes problems with routines, and overthinking.

April is Autism Month. I am glad we have a whole month, and am hoping the world keeps it going for the future, but the world in 2025 is a scary place. I am desperately avoiding News, but that is not always possible.

April 2nd used to be called “Autism Awareness Day”, and then for a while it was called “Autism Acceptance Day.” Now is it just “Autism Day”.

“Why the changes?” you say. Years ago, an organization was founded and brought awareness of autism to the majority of the world. I will not name the organization for now, but if you look up the puzzle piece you will easily find it. There were no Autistic people involved in the organization, but they did what they could to try to understand autism, and bring awareness to people. They were directly involved in creating “Autism Awareness Day” and encouraged people to wear Blue shirts on that day.

The world has since changed. That organization is still around, but had been focusing on ways to “cure” autism. because they feel that it, and us in return, are a disease. as expected this has created a huge rift. Remember there were no actually autistic people on the board of the organization. But we don’t want to lose a day that the world recognizes us and tries to understand us. So many of us pushed for the new name of “Autism Acceptance Day.”

The world keeps changing, and we all are learning more about what it means to be autistic, and what autism entails. I myself was diagnosed as HSP (Hyper Sensitive Person) and autistic as a child. But nobody could tell me what that meant. The only child therapist in town told my mother that I would be smart, but slow. (Both stereotypes of the time).

I never knew why I had to see councilors in school on a regular basis. I was 30 years old when I finally started to piece things together. Because nobody in my life knew what it meant. And then It took me a decade to figure out how to work around the difficulties I was having. A process I am still figuring out, mostly on my own.

We are now at the spot where, Awareness is there. Everyone knows autism exists. But there is a huge amount of misinformation out there. Acceptance is slowly happening, but the world doesn’t like that word, “acceptance.” It is now viewed as “putting up with,” which is not the same.

So we don’t want the world to put up with us. We want the world to acknowledge that we exist, and, like other groups in the world, help us to be productive members of society. Stop gate-keeping things.

One of the problems with Autism though is that it is a spectrum. Every Autist (Autistic person) has special needs, and requires different help. Some of us need a lot of support, and some of us only need that support sometimes.

“But Chad,” you say again, “What support do you need? You are always so grounded.” Ok, you might not say this if you know me…. but I felt I should help you understand myself and some of the things I need support with.

Time to think. Every time someone comes to me out of the blue and asks “Do you need help?” I am thrown off guard. I cannot process this and whatever is happening around me so I will 99% of the time say “No.” its fast, it clears up my mind and I can continue to try and process what is happening around me. EVEN IF I NEED HELP I cannot name what I need without time to stop everything I am doing and think it out.

This also causes severe case of imposter syndrome, when my team is able to go much faster with their classes, and I am still planning out my classes and organizations.

Routines: I love the school I am at, but I hate the 6 days rotating cycle system. I cannot get into routines. I am never sure where I am supposed to be, what I am supposed to be doing, and how much time I have to do it in. I have monthly cycles, and weekly cycles I down pat, mostly. But planning around yet another cycle requires paperwork, and lots of it. But then I spend more time planning what I am supposed to be doing, and not having the time to actually do it.

When routines change last minute. (Oh we don’t have music class today, we have a last minute assembly) I get lost, confused and panicky. I need information about changes as early as possible.

Time: Being late makes me panic. I can mostly fix this with timed alarms on my phone. I always warn myself 5 minutes before something should start or end, otherwise I will be late, and then My brain goes into panic. My wife and I differ on this. She is eternally running late, and I am panicking because of this.

Organization: My wife is my life saver. I do not know where things are, in my home. I might use something 100 times a week, but ask me to find it in a supermarket and I am lost. All Ketchup bottles look the same to me, for example. If I go to the supply room for something, I will not find it unless I go around the room 5 times, even if I got it from there the day before. And the more on my mind, the worse this gets.

I often need help organizing my classroom and workspace. But I need to be involved so I can make notes of where things are moved to.

Style: People always compliment me on my shirts, and the colors of my clothes. 100% my wife. When I started out as a young adult, I wore silk screened Hawaiian shirts (Mostly with Superheroes on them) and Cargo shorts everywhere I went. I also wore a black fedora. I am not saying I would wear that specific style now, but I would literally grab the first thing from my closet and put it on. I do not understand fashion. Why people wear certain clothing together or which accessories with what completely eludes my mind.

Voices: I can handle 2 or 3 people talking at once, but no more. I have had days where I had to sit, and close my eyes for a moment, so I could focus on 1 person talking to me out of a room full of people. In a class I depend heavily on the children to help me by raising their hands. I cannot differentiate voices, so I don’t know who is talking to me unless there is a visual cue. Voice styles (Accents and things) I do recognize, but often there is not enough variance in a class of 20 children to use this to identify everyone.

Noise: Too much noise makes it impossible for me to think. If there is a class happening in my room, I cannot mark papers or do anything that requires thought. I need to put my headphones on, and block out sound. But When I put on my Headphones, everyone wants to talk to me!

Food: If I could get our cafeteria to always have penne bolognese and green salad, I would be forever grateful. But it doesn’t work. here is a list of things I cannot eat in public because of many different reasons.

• noodles. (not Pasta, but long noodles)
• wet meat with bones (ribs, or in soups and stews, fish)
• foods with sauce I have to touch with my fingers.
• mashed stuff
• food that looks like body parts (I’m looking at you Eye-ball rambutans….)
• Stinky food
• Spicy food

I am considered a “Low support” autistic. Some of us suffer shut downs, melt downs and worse from the things I mentioned and more. But people, myself included, don’t always understand what is happening and treat it like a choice.

I think I may be off topic, let me realign.

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I believe I was trying to show how understanding that we need support, and just because you don’t notice it, does not mean that its not there. So this month, please just be kind to all, Autist or not. and if it looks like someone is struggling, jump in to help. If you ask, during chaos, be aware that we may need help and just cannot process what you are saying, let alone an answer. Give us a moment to answer, and please just care.

Happy Autism Month everyone.