children

Why is “Everyone’s a little Autistic” so painful?

This is a phrase I heard about online, and I thought it was silly. I saw Autistic Influencers talking about this. (Yes I just took a 2 minute break to remember the term Influencer). Then earlier this year, while talking about my family and some of the struggles we have had, someone said it.

I was talking about my children, specifically my daughter. About how the struggles I see her going through reminded me of some of the things I went through. I was talking to them about some of the struggles, that they did not see, and then the aftermath when we got home. I talked about my daughter melting down after school, when she got home and felt safe. About how she’s starting to feel the itchiness of her clothing fabric, and her blankets. About her smell sensitivity.

Then the words came through, “I believe everyone is a bit autistic.” It felt like being hit with a brick. I was sure the person who said it was trying to be reassuring, but it did not feel like it. I just stopped talking and looked at them, confused and lost. “It’s a spectrum, right? so everyone is on that spectrum.”

My heart sank. I did not know how to explain this to them, and probably could not even now. Not face to face.

The Autistic spectrum, is not the same type of thing as the LGBTQ+ rainbow. The Sexual preference rainbow does include hetrosexuality (I believe, let me know if I am wrong). All types of love between consenting adults, or no physical love, fit on their rainbow. it is designed to include everyone in an all encompassing beautiful spectrum of color.

The Autistic spectrum is not referencing a rainbow in the same way. The Autistic Spectrum references the millions of light-waves that make it up. Some struggles are easy to see, like Red, Orange and Yellow. Some of our difficulties are not easy to see like Ultraviolet, and infrared. They are part of the light spectrum, but are not visible to the naked eye. Some of our struggles are so hidden, like x-rays, that you only know they are there by their effect on other parts of our life.

To say that everyone is a little autistic, is to tell an autistic person that their struggles are so minor, that everyone has them. Some of us cannot talk, or can only talk in very specific situations. But hey, that’s OK because cousin Bob can’t speak in Germany, he doesn’t speak German. Not the same.

Some of us cannot identify faces unless we are extremely familiar with them. I am like this. But that’s ok, Your sister Jane only remembers actors by their most famous character. It’s not the same.

Some of us cannot go outside because of light sensitivity or sound sensitivity, or smell sensitivity. My own mother passes out if she is near certain colognes or perfumes due to her sensitivity. I get massive headaches from flower scents, and perfumes. But it’s the same as your neighbor Jack who just doesn’t like modern music, right? No.

There is a lot of struggles we have that, believe it or not, we fight hard to keep to ourselves. Many of us older generation, have been taught from childhood, that inconveniencing others is the biggest sin. So we have it ingrained into our very psyche to keep these hidden. It is terrifying for many of us to let people see what we experience.

I am glad that I did not fly off the deep end, as my mother would say. The person who told me that they believed this then opened up about how their children, while not autistic, do have developmental difficulties. I guess, as parents, you always wish for your children to have as easy a life as you can. And if you are trying to normalize developmental difficulties to help your child not feel like an outsider, I applaud you. I, too, am trying to normalize this for the sake of my children.

While I want my children to understand that many people will not experience the things they do. We cannot judge their difficulties, or actions. While, yes, everyone has difficulties, they are different. Not all of them fall on the spectrum. Not all of them fall on the rainbow. And for some, these difficulties may seem insurmountable. The best we can do, is try. Be there for people, and let our close friends and family know what struggles we have.

I have spent many years hiding this aspect of myself. It has only been the last 2 years I have started to open up about Autism. I tried to talk to a very good friend about it 10 years ago, and was met with the comments about not appearing autistic, and how I must be “High functioning.” It did hurt to hear this, and it made it impossible to tell anyone again for years.

The next time I brought it up, was to correct misinformation in a topic we were teaching at that school. My coworker then used the information to convince my department head that I was unsuitable for being Head Teacher, and I was replaced. I had been doing the job well for years at that point, but it made no difference. That man then spent two years purposefully making life difficult for me. I had nightmares about him for 2 years after I left that school.

So when I say it is ingrained in us to hide, these are the reasons why. We are shown that it is a weakness, and that it will be either ignored, or used as a weapon against us. It is really hard to unlearn that. But If I want my children to live in a world that is better, I have to reveal. I have to reveal why things like “Everyone is autistic” hurts. Why our micro-stimming or odd ticks help us and should not be used against us. I have to lead by example.

And that is the most horrifying thing in the darkest areas of my brain. Letting it all out, for the world to see. I am not ready to share my nightmares, even if I must eventually.

Playgrounds: Fun & Games or Danger?

As a parent, living abroad, I have had a very hard time finding free places for my children to play. This has been an ongoing difficulty for the last 18 years. Parks and recreation areas exist, but are not geared for children.

In Beijing, there are a lot of green space parks. I see them all around the city. We walk through them and can relax easily. The one thing I have noticed about these parks, is that they are often equipped with outdoor exercise equipment. Equipment that is suited for the aging senior citizen population. There are no swings, or see saws, or climbing rigs. Instead there are walkers, and stair climbers, and rigs for rotating arms and wrists.

I asked someone about this once. I was told that children needed to use their energy to study and prepare for adulthood. After retirement, they could play.

Apartment compounds are similarly equipped for seniors. The one compound we lived in did have an aging wooden climbing rig with some metal rocking horses on springs. but they were falling apart and not cared for at all. It had no children playing at it.

The school I worked for years at fluctuated on this. When I joined 18 years ago, they had a jungle gym with a slide, climbing bars and stepping stones. Less than a year after I joined a little boy got hurt on the rig. The school removed it to avoid a lawsuit. For the next 2 years there was no playground, just a running track, and soccer field.

Three years later, they installed some new climbing bars. That same year, a girl fell off them and banged her head on the bars on the way down. They were dug up and removed.

5 years later they installed a swing set near the front gate. The security guards would keep an eye on it. I am not clear on the cause, but within a month, they removed the swing and left the frame.

Every few years the school would put something in, and within 2 or 3 months it would be gone.

For the entire primary school years of my two older children, we had to pay for them to enter private playgrounds. They would appear at supermarkets, or malls. However, as soon as there was enough Yearly passes sold, they would disappear. Few of them stayed open. and they were always packed.

I asked one of my son’s classmate’s parents once about how they arranged social time. I was told, that they arranged for their child to attend the same math classes and English classes after school as their friends. Then they could play in class. This seemed to be the general consensus. We did eventually get my son to be able to visit his friend’s house to play a few times. My daughter was not so lucky.

When we moved to my new school I thought things might be different. The school has a lovely playground, and it takes care of it. During the pandemic, my children had free reign over the playground with the other kids that lived on campus. It was great.

Kids at this school had to have insurance. It was a requirement to even register with the school. So if a child gets hurt, the parents wouldn’t sue the school. Theoretically.

Last summer they replaced the playground with a great big new playground. It has climbing poles, and nets, and slides, and in one area 3 roundabouts. 2 that you can sit on and 1 that you hang from.

Well a little girl was on the roundabout and flew off while it was spinning. So the school welded them all still. The kids, being kids, broke the weld by forcing the roundabouts around. and the school bolted them.

So now we have 3 brand new roundabouts that are useless, and are just seats, or hanging bars.

My point with all this is this. When did society decide that children cannot play? Or that they can only play where there is a profit to be made from them?

I remember being thrown off of a seesaw when I was a child. I lost a tooth, and bloodied my nose. It was terrifying, and I don’t recommend it. But from my experience, everyone nearby learned. The compound kept the seesaw. When the other kids played on it, they made sure that the weight was close to even.

I cannot imagine what would happen here and now if that happened.

Look I don’t want my children being mauled or disabled by playground equipment. but I do want them to be able to learn from making mistakes. They need to learn to identify problems or dangers. If we take all dangers away from them, they cannot learn this fundamental skill.

My children used to see more playgrounds in Peppa Pig and Mickey Mouse Clubhouse than they did in real life. So with the youngest I want to keep her out playing as long as the air is clean enough. If she gets hurt, we’ll hug her and she will learn from it. Worse case scenario, she needs a doctor for an injury. but still, she will get support from us, and will learn. She will also get time to play with other kids, and learn social skills that we had to fight hard to expose her older siblings to.

Does this make me a bad parent in the world’s eyes?