Autism

Haircuts: an adventure.

Autism, Daily Life, Musings Leave a comment

I don’t cut my hair often. I do it once, maybe twice a year. I have been told this is odd, and my friends and coworkers are usually shocked when I do it. There are a few reasons for this, which I will go over here.

Location

I live in China. I do not speak Chinese well. I know this is a terrible reason. I take photos of the haircut I like, and show them to the stylist. This is most often successful, but not always. I have had stylists over the years not know how to handle naturally wavy hair, and this caused them difficulty.

I can’t use this reason as a main reason for waiting as long as I do. There are some amazing hair dressers in China, and ones that speak English. I also ran into this issue when I lived in Korea. And I could speak Korean well enough to explain what I need. I often use this as an excuse for not cutting my hair often. Nonetheless, it is actually a lie I use to mask.

Sensitivities:

The reality is not that I don’t like getting my hair cut. I love having a nice short hair style. I do not like hair salons. One of my autistic traits is Hyper Sensitivity.

Any good hair stylist is trained to talk, and calm down their customers. Even in other countries, the hair stylists try to engage in conversation when possible. Then there is music playing in the salon, and hair dryers, and other tools. Too many types of sound make me antsy. I could focus on the music, or I could focus on the conversation with the stylist. But not both. Whichever one I choose will be suddenly interrupted by the sound of hair dryers and other devices. Which can be jarring.

I Really Do Not Like things touching my face. I get anxious about it. I shower away from the shower head, and wash my face with a cloth. I can control the cloth, and it is not as hard. So when they lay me down to shampoo my hair, it bothers me if it gets on my face. Even a little contact irritates me greatly. Or they are drying my hair and the towel rubs onto my temples, or forehead. It gives me the willies. Or when they are cutting my hair, a little bit falls on my nose. Hair also falls on my cheek or anywhere on my face. I need to quickly brush it off. but that leads me to the next problem.

It is not natural for me to be sitting still with sharp objects anywhere near my body. I have visions of losing an ear, or being sliced by razors. This is not just related to haircuts. In the kitchen, if anyone else has a knife or scissors, I need to be far away from them. I am afraid of losing a finger, or other appendage. And so I put a lot of mental energy into making sure I am extremely still. It is not natural for someone to allow sharp objects so close to their body, let alone their head. It terrifies me. Under that cape, I am holding my hands tightly. When I get up, you might see my ring impression on my other hand.

I used to get baffled by people who would put themselves through this torture on a monthly basis. Or worse, weekly. These people are weird.

Oddly enough, I believe my wife has these same hesitations as I do. Yet, she has a choice that I do not. Me. My wife actively avoids hair salons. For the last 2 decades, when she feels her hair is getting too long, she asks me to cut it. I am not a trained stylist. But she refuses to go to a salon. So I do my best every year.

One of many reasons why I feel my wife and I are amazing. We understand each other and do not force each other into things we can’t handle ourselves.

Routines: falling into or making them?

Autism, Daily Life, Musings, Original, , , , , , , One comment

Routines are a very important part of life for me, and for all autistics. Th difference between routines and schedules is blurred for many people. For us, however, there is an obvious difference, and when routines and schedules clash, headaches occur.

So first let’s explain what I mean by both Routines and Schedules before we continue. A routine is an action repeated in a certain order on a regular basis. the actions do not have a set time to begin or end.

My daily drinks are a routine; Every morning, I have a coffee with or just after breakfast. I then bring a mug of hot chocolate with me to work. Hot drinks calm me down, and help me relax and think. On a tough day, my hot chocolate doesn’t last. I must then get a mocha from the cafe on campus. Then in the evening after dinner, when the children have gone to bed, I have a lemon tea.

A schedule dictates the times things begin and end. Period one begins at 8:20, and ends at 9:05. No exception.

I have a love-hate relationship with schedules. First: I have a hard time keeping track of time, and I know several autistics that do as well. To combat this, I have alarms on my phone and smart watch. They warn me when there is only 5 minutes left to a class period or a recess. I don’t like surprise schedule changes, or endings. My other problem is my brain is fixed that a schedule must be followed. I get anxious if it is not. Family running a little late for church? anxiety. Another teacher running into recess or break time with my students? anxiety. I finish my lesson early, and have empty space to fill? anxiety.

Many Autistics are able to easily merge their work schedule with their routines. I envy this. However, the school I work at does something that makes it really hard to keep track of for me. Our schedules do not follow the calendar week. The schedules follow “Letter Days”. Each week is different than the previous week. but there is still a repetition there. So now I have to keep track of 2 separate calendars in my head. Children have special events on Week Days (Little Johnny takes the bus home on Mondays), but classes follow “Letter days” (Grammar class happens on Days A & C)

Many days my head hurts from planning the week.

But this comes to the point of all this. You do these things, you eventually fall into routine with them. after 3 years, I am better at planning my week around the letter days. I also have a better control of my daily routine. You just fall into them whether you like it or not.

Arguably, falling into a routine because it is forced on you, is easier than creating your own routine.

Often we are told about how managing our routines can benefit us. As an Autistic, I have a limited amount of social energy. So I try to use it sparingly. the problem is, if I drain myself, it stops me from thinking. My brain shuts down.

I know I need to change my routine, and go to bed earlier, or to blog regularly. But the change of routine takes energy, and it feels unnatural for the first month or so. So if I am drained, like I often am lately. I don’t have the energy to fight the routine, or to change it. I just fall into it to save energy.

One example of this. Back in September my wife and I promised to walk with each other Monday, Wednesday, Friday. The plan was after dark, just around the block. But every day I have come home completely exhausted. I have just enough energy to (most days) help my daughter with her homework. And then I shut down. I stare at a screen or a wall, and cannot function for hours.

Another example is My weekly teacher D&D Game. Many people would think that this would cause me to get drained. But it was my routine. I would talk with friends, problem solve logically, or laugh. I would come home feeling a bit refreshed. When we had a month of cancellations, I was more exhausted just coming home. and I had to accept a change of routine, that I really did not want.

Of course some routine changes are easier than others. If I have someone there to help me with the routine, it becomes easier. My wife helping me get used to the weekly church is an example. Or the messages I get from members of my Men’s group reminding me of the Monday meeting. these were easy to get into. Other people are sharing the energy loss.

Alone, it is hard, exhausting, and sometimes terrifying. Not logically terrifying, but emotionally so. Knowing how hard it can be, I just don’t want to do it many times.

Who helps you with your routine changes? can you make these changes on your own? please let me know.

Dungeons & Dragons & Me.

Autism, Basic D&D (circa 1990), Games, , , , Leave a comment

It feels strange to talk about this, so please be kind as you read.

When I was young, I had a very hard time making and keeping friends. In elementary school I was accepted by my younger brother’s friends, but did not completely fit in there. I was the big kid that asked the younger kids a lot of questions.

When I was in Junior High (What we called Middle School), I had a friend. We will call him Rick. I discovered much later that Rick was pretending. He was always doing and saying things to make me look bad so people would laugh at me. I didn’t notice, because Rick smiled when near me and asked me questions, and ate lunch with me. He laughed near me. I thought he was laughing with me, but discovered later that it was at me.

Around this time, my oldest brother was part of a group of High Schoolers who played Dungeons and Dragons. They often played at our house in the basement. I would sit and watch them, and they eventually invited me to play, much to my brother’s dismay.

These older guys made me feel welcome. At that time, D&D was not a popular game. It was the kind of thing people got bullied for playing. But these guys accepted me, truly.

After a few months, I went and bought the basic boxed set with my allowance. (The Red Box Set). The game was amazing because it opened up opportunities to try things without being ridiculed. As an autistic person, the fear of making a mistake, or saying the wrong thing can be paralyzing. We are always afraid that we will do the wrong thing. We fear being assaulted verbally or emotionally by others for mistakes.

No it is not an irrational fear. We get this fear because of experience. We have received criticism for everything, and nothing. Growing up, it felt that I could do no right. My family were always cautious abotu saying things near me, my school mates chastised me for playing wrong. My teachers, were nice, but were always correcting me for things I didn’t understand.

Anyways, Dungeons and Dragons allowed me to try things out in a game of imagination. If it was a mistake, the other players wouldn’t pick on me or tease me. I would find out the logical conclusion to my actions, and then we would move on. No problems.

I tried running games for Rick. He hated the game, and wanted nothing but to hurt people in the game. For those in the know, he would be called a MurderHobo. For those not, in the games of imagination, he would describe burning down orphanages, and stabbing people in the street. As an empathic person, this would horrify me. I would have actual nightmares after playing with him. So I stopped.

My younger brother and his friends were interested in playing, and that was great. I ran the games more than I played them. These guys wanted to help people in the game. They were people with a good moral compass. And so I played with them. Rick still hung out with me at school. He even convinced me to run a game for a few other people and him.

That was a mistake. We were making characters one time for the new game, and the three of them began discussing something. I did not understand what they were talking about, even though they did not hide it. Eventually, 10 minutes in, I realized they are talking about how to physically torture me. When I protested, they said it was a joke. I left. I never talked to them again.

So now I was just entering High School, and I had no friends of my own at school. My younger brother was in Junior High with his friends. I never felt so alone. I recognized a couple of people from my grade 1 year. I moved a lot when I was a kid, so was relieved to see them again. But when I tried to become friends with them, I was told by a teacher that I had scared them. I was to leave them alone.

So I had this game I could play after school, and that got me through Grade 10. No friends.

Grade 11 is when I met my first friends that I had not borrowed from my brothers. They invited me to watch Japanese cartoons at lunch, and I invited them to play Dungeons and Dragons. (Actually a version of the game I had made myself.) And most of these people I still consider friends, even though I don’t talk to them often. Some I only talk to every couple of years.

When I came across a Kickstarter 6 or 7 years ago called Critical Core, I had to invest. This was D&D written in a way to help Autistic kids learn to interact with others. I bought my set. Covid hit, and I honestly didn’t think I would every get it because of the issues caused by the pandemic. But they sent me a Digital copy, and then a physical copy.

Critical Core is what I needed when I was young. I urge you all to look it over. The people who designed this care. They get it. They understand how hard life can be for kids like me. And they want to make it better. No they did not sponsor this. I doubt they will ever find out I wrote this.

Now I am back, and as an adult at the job I have, D&D was my go to stress relief. Except this year, I have nobody to play with again. And so I write here. Schedules and life have fallen apart. Work feels more like work, and is a lot heavier. But no time to play.

It sucks.